Team Kylee & Hip Dysplasia Awareness: October 2011

Surgery Day For Kylee :(

Monday, October 17, 2011

The family is sitting at sick kids hospital waiting for our lil misses' surgery to start.. All of our hearts are breaking just thinking about it but we are all here together hoping for the best... We love you babygirl!!!!!!! Xoxoxoxoxox - auntie corie

SURGERY DISCHARGE SUMMARY

3 year old girl with bilateral hip dysplasia and dislocations. Otherwise well. She has bilateral trendelenburg gait and significantly reduced abduction on physical at clinic, and x-rays reveal bilateral hip dislocations.

She was admitted for a staged procedure of reduction of her hips on Oct 17th 2011. She had a left hip open reduction, capsulorraphy, proximal femoral shortening osteotomy, and innominate osteotomy on Oct 17th 2011.

She did well. Her hip reduced concentrically. She was immobilized in a spica cast post-op.

She can be activity as tolerated in her spica as long as she does not weight bear. She will have the cast off in 7-8 week in in Dr.Wedge's clinic with x-rays.

SPREAD AWARENESS & LEARN ABOUT HIP DYSPLASIA!

Procedure:

Pictures of Lil Miss

Thursday, October 13, 2011

Kylee was born January 20th 2008
1st child - female

Our Precious Kylee-Bum

LIL MISS BEAUTIFUL!

Learning to walk ♥

Strawberry Pickin' ♥

Rockin Babygirl ♥

* KYLEE APRIL *

Enjoying the snow outside :)

Kylee & Mommy having fun!
Kylee & Daddy! Kylee having fun at the waterpark! Swingin' away at the park :)

Contact Us

We are Team Kylee, family & friends of Kylee(3 1/2) who we recently learned has hip dysplasia. Our mission is to bring awareness to hip dysplasia, as well as keep people updated on Kylee's journey through surgeries, spica casts & everyday life. We hope that sharing our experiences with hip dysplasia helps people learn about it, or helps other parents who have children who are dealing with this as well. Please feel free to contact us anytime.
We truly thank everyone for their support & love.

Email: teamkyleehda@gmail.com

Facebook: Team Kylee & Hip Dysplasia Awareness

Hygiene Tips for older child in spica cast

Wednesday, October 12, 2011

Tips and information on how to keep an older child in a spica cast clean :) Thanks to Steps Charity & these wonderful people that share these great tips.

Keeping an older child entertained while in a spica cast

Great ideas on how to keep your older child entertained at play while in a spica cast. Thank you so much Steps Charity & the families who share their stories.

Mobility Tips for older child in spica cast

Ways to help your older child be mobile outdoors while in a hip spica cast. Thank you to Steps Charity & the parents in the video.

Car Seat Ideas for Older Child in Spica Cast

Ideas on how to transport your older child who is in a hip spica cast. Thank you to Steps Charity & the people who share their stories & tips.

Older Child in Hip Spica Toilet Ideas/Tips

An informative video on ideas and tips on how to help your older child in a hip spica cast with their toilet issues. Thanks to Steps Charity & the parents in the video for all the valuable information.

Spica Cast Care Tips(video)

Videos that show examples on how to keep a spica cast clean and dry. Thank you to Steps Charity & the parents in these videos for these great tips & ideas.

How a child is fitted with a Spica Cast

This is an example of how they put a spica cast on a child after a hip reduction surgery.

How to Hip-Healthy Swaddle Your Baby

Are you swaddling your baby properly?

Improper swaddling may lead to hip dysplasia. When in the womb the baby's legs are in a fetal position with the legs bent up and across each other. Sudden straightening of the legs to a standing position can loosen the joints and damage the soft cartilage of the socket.

Dr. Price, from the International Hip Dysplasia Institute (IHDI), explains why special attention should be paid to how your baby is swaddled to prevent hip dysplasia, and multiple hip-healthy swaddling methods are demonstrated.

For further information on hip-healthy swaddling and how to prevent hip dysplasia please visit:
http://www.hipdysplasia.org/Developmental-Dysplasia-Of-The-Hip/Hip-Healthy-Swaddling/default.aspx

*Thank you to IDHI for the very accurate and valuable information :) *

About Hip Dysplasia

This is a video from Dr. Charles T. Price, Director of the International Hip Dysplasia Institute, answers the following questions about what hip dysplasia is and how it's treated in infants, babies, and young children:

What is hip dysplasia?
Is there a difference between hip dysplasia in newborn babies and dogs?
Who is at risk for hip dysplasia?
What can cause hip dysplasia?
What is a hip click?
What happens if you detect a hip click?
What is the treatment for hip dysplasia?
What treatment options are available for mild forms of hip dysplasia?
What happens if harness treatment doesn't help?
What happens if surgery is required for hip dysplasia?
What happens if surgery isn't successful?
What happens if hip dysplasia is diagnosed at a later age?
Can hip dysplasia be misdiagnosed?
Is hip dysplasia more common in certain cultures?

For more information about hip dysplasia please visit : www.hipdysplasia.org

The International Hip Dysplasia Institute is a non-for-profit effort to improve the health and quality of life of those afflicted with hip dysplasia.

Team Kylee is extremely grateful the International Hip Dysplasia Institute exists, please consider making a donation to help them in their journey to spread the word about Hip Dysplasia. Thank you so much!

Who is Kylee?

Tuesday, October 11, 2011

Kylee is a 3 1/2 year old girl who loves cats, animals of all kinds, as well as her family and friends. Kylee loves to sing, watch movies, play with her cousins and friends, jump on the trampoline, and go on all sorts of fun adventures with her mommy, daddy & family. She is sweet, loving, funny, and is very smart. Everyone loves Kylee :)

Ollie, Buffy & Kylee - These are Kylee's dogs :)

This is Kylee & Davy-Boy, Kylee's Bearded Dragon :)

find us on facebook

Team Kylee & Hip Dysplasia Awareness On Facebook

We want to spread the word about Hip Dysplasia & also share our story of Kylee's journey throughout surgeries, recovering, and just everyday life. Team Kylee was created for family, friends & anyone wanting to show support. Feel free to like our page or invite others, the more people who like the page, the more people are aware of Hip Dysplasia.

Thank you so much to everyone for the support & love, it is greatly appreciated. xoxo

Team Kylee

Hi Everyone, on behalf of Dallas & Shannon, we are creating Team Kylee for support, love, well-wishes for Kylee ♥ & to help bring awareness to Hip Dysplasia.

We recently learned that Kylee (3 1/2yrs old) has Hip Dysplasia, basically both her hips are dislocated and she will be undergoing multiple surgeries to make her "boo-boo's" better. Her 1st surgery is scheduled for October 17th.. #Team Kylee is for anyone who wants to show their love & support, write well wishes or find updates on how Kylee is doing. Thank you so much for your support, TEAM KYLEE ♥

What Is Hip Dysplasia?

What Is Hip Dysplasia?

Hip dysplasia means that the bones of the hip joint are not aligned correctly. It affects thousands of children and adults each year and is known by many different names:

Developmental Dysplasia of the Hip (DDH)
Hip Dislocation
Congenital Dislocation of the Hip (CDH)
Loose Hips
Hip dysplasia prevents the hip joint from functioning properly and the joint wears out much faster than normal, much like a car's tires will wear out faster when out of alignment. It is also a "silent" condition that means pain is not normally felt until much later stages, making it harder to detect.

Hip Dysplasia in children (DDH) - is commonly referred to as Developmental Dysplasia of the Hip (DDH), approximately 1 out of every 20 full-term babies has some hip instability and 2-3 out of every 1,000 infants will require treatment. In spite of the frequency of DDH in babies and the potential for life-long disability caused by DDH, the awareness of this condition is poor outside of the medical profession.

Early diagnosis, prevention, and simple treatment is the best solution, however many hip dislocations are difficult to treat with the current methods of care.

Copied from Hip Dysplasia.org(thank you International Hip Dysplasia Institute for all the valuable & reliable information)

About Kylee

Kylee was born Jan 20.2008 and was a beautiful healthy winter baby. Kylee is currently 3 ½ and loves life. She loves to run and play and sing like every other kid. We recently found out that Kylee has Hip Dysplasia, which means her hip bones are dislocated and will need surgeries to fix and mold her hips back together to hopefully one day be able to move around just like you and me.

Kylee's 1st surgery is booked for Oct 17 2011 at Sick kids Hospital by Dr. Wedge, head of Orthopedic department at Sick Kids. After a major surgery, Kylee will be in a body cast (Spica cast) from her chest to her ankles and not be able to move around on her own or even sit up. As Kylee’s Mother,I have quit my job to look after my beautiful little girl and give her the support she will so badly need.

If all goes well, Kylee will go for her 2nd surgery on Dec 2 2011 and from there will be in the same body cast til' mid Feb and then will have to begin the long road of relearning everything she had worked so hard on learning as a tot: walking, crawling, and possibly even toilet training and what ever other surprises may come up during this period.

This is going to be very hard on Kylee as she has no idea anything is wrong with her and as of right now can walk and run and play like all the other kids. But on Oct 17 her life is going to forever change as she will dance into the hosptal, loving life, without a care in the world, but she will wake up and be trapped in a body cast and not be able to move or sit for 4-6mths. We will do everything in our power to make Kylee happy and enjoy every moment that she can be the sad reality is she is going to miss out on so much.

Please feel free to take the time to learn about this condition that effect 1000’s of people and babies all over the world @ http://www.hipdysplasia.org/ if we can even just raise awareness with Kylee's story we are doing our part. Kylee also has a facebook page to support her, feel free to join Team Kylee & Hip Dysplasia Awareness @ https://www.facebook.com/pages/Team-Kylee-Hip-Dysplasia-Awareness/276422392382555

Thank You for taking the time to learn about Kylee’s story, she is amazing little girl.

Sincerely,

Dallas & Shannon Dutchyn
Kylee's parents

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