Last Day Til' CAST-OFF!!!!!!!

 Monday, November 28, 2011

 HIP HIP HOORAY!!!!!!!!!!! :D Tomorrow morning, Kylee is taking a trip to Sick Kids Hospital (Toronto) to get her cast taken off!!!!!!!

  Kylee is scared and says she wants to keep the cast on instead *lol*, but we are reassuring her the best we can - we know she can do this! :) 

 We are all very hopeful that everything goes well tomorrow and that the x-rays come back good!!! *fingers crossed!*


                                       Good Luck Kylee, we love you so much! xoxoxo

                               Thank you again to everyone for all the support & love!
                                                     Lots of love to all of you xoxoxo

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Must haves or helpful products for spica cast care

 These are items that have helped us take care of Kylee & her spica cast while she is in it.

* Reclining Wheelchair - If you are going to purchase or rent any wheelchair, one that can be reclined in different positions or lay down flat should be good - definitely one that has a buckle so they can't slide out - rolled up towels also help on the sides to help prevent child sliding to one side, or a pillow near the foot so there is support.

          This is Kylee's wheelchair, she loves sitting in it to do her arts & crafts

* Bean Bag Chair - A regular kind should work fine, we got one that is shaped more in a sitting up position, which hopefully will be useful when both her legs are casted.

* Maxi-Cosi stroller - This is the stroller we got for Kylee, it is great because it lays down flat, and can angle at the bottom


        More info about this stroller can be found here : Maxi-Cosi Perle Stroller

* Pillows, Blankets & Towels - Fold them to help prop up the leg(s) and help keep them comfortable.

* Flashlight -  Use to check inside openings of cast for sores, irritation from urine or tape, discloration, or any random crumbs that sneak in.

* Note Pad & Coloured Pens - Great to keep track of your child's progress - we used a Blue pen to write when Kylee's position was changed, what position and the time. A Red pen was used to keep track of her medicine type and dosages and time medicine was given. Black pen was for her temperature and the times it was taken.

* Castcooler or a hair dryer - A MUST-HAVE!!! The Castcooler is amazing! It truly does work the way they advertise and for us was totally worth it! A hair dryer works ok, and was used whem Kylee was scared to use the Castcooler at first(because of the vacuum suction - note: you need a vacuum for this product).


 For more info on Castcooler, check out the website here : www.castcooler.com

* Tape -  we tried many different kinds of tape... sports tape, gorilla tape and duct tape work for us the best -  sports tape doesn't irritate -  place around edges where openings are around private areas, then use duct tape and gorilla tape to hold down sports tape. Its good because the tape can be replaced when needed (ex: when it gets wet from urine)



* Washcloths, Basin or bucket for water, soapy water - Needed for sponge baths - good to keep them as clean as possible. Because the cast should not get wet, you can use towels or plastic bags to cover places you don't want getting wet.

* Diapers or Underwear/Light Pajama Shorts/Leg Warmers - In the beginning, after the surgery - diapers are basically the way to go...especially as they are first recovering. Kylee, because she is older and was already potty trained, prefers to use the toilet, we hold her on an angle and it works - shorts are great as they are not too tight and are easy to remove in a hurry for a bathroom trip.

Clothes - We use shorts, tights or bigger sized pants and they fit over the cast. For shirts, the sizes 4/5 wear fine on Kylee(almost 4yrs-size 4). Nightgowns and dresses as well work fine... as long as the clothes are loose fitting and not too tight. There are also great websites online that you can purchase clothes made specifically for children in spica casts.

* Britax Hippo Car Seat - we rent the one we have, otherwise we have to spend more to get an ambulance to get her to and from the hospital. Ask your hospital if they rent them out, or if they know where you can get or rent one.


                                                  This is the Britax Hippo Car Seat

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Kylee update :)

 Friday, November 25, 2011

Kylee is doing great, she is our lil trooper! :) She has been at home where mommy & daddy are doing a wonderful job keeping her entertained & happy as can be. They have gotten her a wheelchair so that she can sit up when she wants :)



We also have a new addition to the family, a little kitty named Scarlett!! Mommy & Daddy decided to surprise Kylee with a kitty because she absolutely loves cats, and boy was she surprised!! Here is the video of when she was surprised with a kitty!!! :)







 Kylee is picky about pictures being taken right now sometimes she's ok with it, sometimes not lol, but here are a couple Shannon took :)



Kylee has been at home since her surgery, and in a few days the 1st cast is going to be taken off...Kylee has been saying to everyone that she doesn't want the cast off LOL it's not going to hurt, but for a little one, of course it's a scary thing - so we are trying to help her understand that it will be ok to get it off :)

Kylee has fun with mom during the day, they have lots of fun doing arts & crafts, or playing lots of different games...sometimes a movie and some snacks keep her occupied for a bit while mommy cleans around the house...Or we end up playing Rapunzel, Monster high or barbies :)


She has had lots of fun even though she has been stuck in her cast, and now is such a wiggleworm, sliding her way around on the floor and even tries to crawl around!! lol its crazy to see her do it, and scary(auntie corie thinks so anyways) but it makes me happy to see how great she is doing.

A few more days to go and the 1st cast comes OFF!!!!!!!!!!!!!!!!!!! whoooot whooooot! ;)

WE LOVE YOU KYLEE!!! XOXO

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Surgery Day

 The day of Kylee's surgery was definitely a tough day for the family...We had a long day of waiting, but thankfully - Our girl's surgery went great and she did SO well in recovery! It was 2 days before we she even cracked a smile though, it was sad :(



Kylee resting & daddy holding her hand 
The doctors at Sick Kids had forgotten to give her antibiotics to help fight off any infections, so the first few days were tougher than normal due to worrying about her getting an infection-luckily things continued on fine, no infection. WHEW!

                   

                                                            -Kylee 3 days after surgery -

 Dallas and Shannon had to use an ambulance service to get her home from Sick Kids, but have since decided to rent a special Britax Hippo Car seat for any future trips necessary.

When Kylee came home from the hospital, she went home to a living room FILLED with all sorts of balloons! and pretty decorations! The first few days out of the hospital were rough, but thankfully she never had too much pain or any complications - she is doing so great now, we are all so very proud of her!!

 Thank you to everyone who has shown support, or have sent their love, we appreciate it so much!

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Team Kylee & Hip Dysplasia Awareness

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